House of Commons · Westminster Hall
13 December 2022 · 3 other contributors · 3,065 words
Opened by Karl Turner Ind Kingston upon Hull East
Responding minister: Not recorded
Summarised by AI from the official record, so it can contain mistakes.
Karl Turner raised concerns about motor neurone disease research: government funding in Westminster Hall. Response awaited from government.
Key points
Key requests to Government
The lead MP asks the Minister to arrange a meeting between MND campaigners and the Secretaries of State for Health and Social Care and BEIS to provide clarity on when and how the promised funding will be made available.
MPs spoke in turn to share their views and ask questions. Here's what each person said.
Opened the debate
MND is a devastating and untimely disease, with six people dying of it daily in the UK. The MND Association estimates that a third of those diagnosed die within one year. Following meetings with campaigners and the Business Secretary, the Government pledged to invest £50 million but failed to deliver on this promise for over 12 months.
He thanked the Government for listening and making important announcements regarding MND research funding. Mr Lewer expressed his gratitude towards these actions and looked forward to further collaboration with the Minister.
Mr Evans raised concerns about a higher incidence of MND among sportsmen and urged GPs to test for MND early in patients' journeys, as late diagnosis can be detrimental.
The hon. Member highlighted the lack of adequate care and provision for MND in Northern Ireland, stressing the importance of improving access to clinical trials across the UK.