Commons Sense

House of Commons · Westminster Hall

Huntington's Disease And Its Impact On Families

09 November 2022 · 0 other contributors · 596 words

Opened by Hilary Benn Lab Leeds South

Responding minister: Not recorded

NHS

Summarised by AI from the official record, so it can contain mistakes.

Read the full transcript on Parliament.uk

At a glance

Hilary Benn raised concerns about huntington's disease and its impact on families in Westminster Hall. Response awaited from government.

Key points

  • Hilary Benn raised concerns about the impact of Huntington's disease on individuals and their families in the UK.
  • Approximately 8,000 people in the UK have Huntington's disease, with around 32,000 at risk due to inheritance.
  • The disease causes a gradual decline in cognitive function and motor skills, leading to severe emotional distress for caregivers.

How the debate unfolded

MPs spoke in turn to share their views and ask questions. Here's what each person said.

Opened the debate

Hilary Benn Lab Leeds South

Hilary Benn is concerned about the devastating impact of Huntington's disease on individuals and their families. The disease affects approximately 8,000 people in the UK, with around 32,000 at risk due to its hereditary nature. There is no cure for Huntington's, which leads to a gradual decline in cognitive function and motor skills, causing severe emotional distress for caregivers who witness loved ones losing their personality and becoming unsteady or aggressive.

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