Commons Sense

House of Commons · Written Ministerial Statement

England Rare Diseases Action Plan 2025

03 March 2025 · Department of Health and Social Care

Proposed by Ashley Dalton Lab West Lancashire

NHS

Summarised by AI from the official record, so it can contain mistakes.

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At a glance

Key points

  • England's fourth Rare Diseases Action Plan was published on international Rare Disease Day in 2025.
  • The government commits to three new actions to improve care coordination and access to new therapies for rare diseases.
  • The plan updates progress since the UK Rare Diseases Framework was published in January 2021 and will be monitored for outcomes during 2025/26.

Issue summary

The statement discusses England’s fourth Rare Diseases Action Plan published on international Rare Disease Day.

Action requested

The government commits to three new actions in the year ahead, focusing on improving care coordination and facilitating access to new therapies for rare diseases. The plan updates progress made since the UK Rare Diseases Framework was published in January 2021 and will be monitored for outcomes during 2025/26.

Key facts

  • England’s fourth Rare Diseases Action Plan was published on international Rare Disease Day.
  • The UK Rare Diseases Framework received nearly 6300 responses from the National Conversation on Rare Diseases in January 2021.
  • Four priorities of the Framework are helping patients get a final diagnosis faster, increasing awareness among healthcare professionals, better coordination of care, and improving access to specialist treatment.
  • The action plan commits to three new actions for the year ahead.
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