Commons Sense

House of Commons · Written Ministerial Statement

England Rare Diseases Action Plan

28 February 2022 · Department of Health and Social Care

Proposed by Maria Caulfield Con Lewes

NHS

Summarised by AI from the official record, so it can contain mistakes.

View on Parliament.uk

At a glance

Key points

  • The UK government published the first England Rare Diseases Action Plan on international Rare Disease Day.
  • The plan focuses on improving access to care and treatments for people with rare diseases in England.
  • Initiatives include advancing nucleic acid therapies through Gene Therapy Innovation Hubs.

Issue summary

The UK government has published the first England Rare Diseases Action Plan on international Rare Disease Day.

Action requested

The plan aims to improve access to care and treatments for people with rare diseases in England, with a focus on advancing nucleic acid therapies through initiatives like Gene Therapy Innovation Hubs. The progress will be monitored over the coming year, informed by feedback from patients.

Key facts

  • The Action Plan is part of an ongoing commitment to improve lives of those living with rare conditions.
  • It follows the UK Rare Diseases Framework published in January 2021.
  • Implementation will be phased over five years, focusing initially on actions for the coming year.
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