Commons Sense

House of Commons · Ministers' Questions

Sickle Cell Disease

Tuesday 23 January 2024 · 2 questions

Summarised by AI from the official record, so it can contain mistakes.

At a glance

Answered 0 Partly answered 2 Not answered 0

Key points

  • Janet Daby asked the Minister about steps being taken to improve healthcare outcomes for patients with sickle cell disease.
  • The Minister welcomed the launch of a new blood-matching genetic test for sickle cell patients.
  • The Minister offered to meet Janet Daby and the Sickle Cell Society to discuss improving patient experiences and access to medications.

Topics (select to filter)

Questions & Answers

Q1 Janet Daby Lab Lewisham East
NHS
Context

The issue of healthcare outcomes for sickle cell patients is highlighted as an important concern, particularly in light of the 'No One's Listening' report recommending immediate pain relief upon arrival at A&E.

Question

What steps she is taking to improve healthcare outcomes for patients with sickle cell disease. I congratulate NHS England on the launch of the new blood-matching genetic test for sickle cell patients, but it has been more than two years since the “No One's Listening” report, which made the key recommendation that sickle cell patients receive pain relief within 30 minutes of attending accident and emergency. Why is that still not happening for sickle cell patients?

Answer from Andrew Stephenson

I would be happy to meet the hon. Lady and the Sickle Cell Society to look at how we can improve patient experiences and ensure that all patients benefit from timely access to the medications they need. I am delighted that she welcomes yesterday's announcement of a new blood-matching genetic test, which is an example of how the NHS can bring forward world-firsts and transform patient care.

Partly answered

Not addressed: The specific issue about why pain relief within 30 minutes has not been implemented was not directly addressed with concrete steps or timelines.

How: Would Be Happy To Meet

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Q2 Janet Daby Lab Lewisham East
NHS
Context

The issue of healthcare outcomes for sickle cell patients is highlighted, particularly regarding the implementation of recommendations from the 'No One's Listening' report.

Question

Why has it taken more than two years to implement pain relief within 30 minutes for sickle cell patients? Would the Minister like to meet me and the Sickle Cell Society to discuss how to achieve that?

Answer from Andrew Stephenson

I would be happy to meet the hon. Lady and the Sickle Cell Society to look at how we can improve patient experiences and ensure that all patients benefit from timely access to the medications they need.

Partly answered

Not addressed: The specific issue about why pain relief within 30 minutes has not been implemented was not directly addressed with concrete steps or timelines.

How: Would Be Happy To Meet

Was this summary accurate? Tell us

How accurate was this summary? (1 = poor, 5 = spot on)