Sudden Unexpected Death in Epilepsy

Opened the debate

Olly Glover highlighted the significant issue of SUDEP, where at least 21 people die every week in the UK from epilepsy-related causes. He emphasised that 60% of these deaths are preventable but noted systemic failures in implementing existing guidelines and conducting risk assessments. Glover cited challenges like long waiting times for neurology consultations and a lack of awareness and communication about risks among patients, families, and healthcare providers. He called for a modern framework to address SUDEP, mandatory training initiatives, integration of epilepsy care into neighbourhood health services, and support from the government.

Government Response

Sharon Hodgson acknowledged SUDEP as a crucial issue and committed to meeting Glover. She outlined several initiatives, including statutory duties to respond to prevention of future deaths reports, the embedding of structured risk assessments in routine practice, and efforts to reduce waiting times for neurology services. The Minister also highlighted funding for epilepsy research through NIHR and investments in clinical trials for cannabis-based medicines. Additionally, she noted the importance of tailored support for patients with learning disabilities and emphasised the development of safety checklists and training modules. Hodgson thanked Glover and other MPs for their contributions and committed to working with partners across the health system to reduce deaths from epilepsy.