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Motor Neurone Disease Research: Government Funding
13 December 2022
Lead MP
Karl Turner
Kingston upon Hull East
Lab
Responding Minister
Not recorded
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Word Count: 3065
Other Contributors: 3
At a Glance
Karl Turner raised concerns about motor neurone disease research: government funding in Westminster Hall. Response awaited from government.
Key Requests to Government:
The lead MP asks the Minister to arrange a meeting between MND campaigners and the Secretaries of State for Health and Social Care and BEIS to provide clarity on when and how the promised funding will be made available.
How the Debate Unfolded
MPs spoke in turn to share their views and ask questions. Here's what each person said:
Lead Contributor
MND is a devastating and untimely disease, with six people dying of it daily in the UK. The MND Association estimates that a third of those diagnosed die within one year. Following meetings with campaigners and the Business Secretary, the Government pledged to invest £50 million but failed to deliver on this promise for over 12 months.
He thanked the Government for listening and making important announcements regarding MND research funding. Mr Lewer expressed his gratitude towards these actions and looked forward to further collaboration with the Minister.
Chris Evans
Lab Co-op
Caerphilly
Mr Evans raised concerns about a higher incidence of MND among sportsmen and urged GPs to test for MND early in patients' journeys, as late diagnosis can be detrimental.
Jim Shannon
DUP
Strangford
The hon. Member highlighted the lack of adequate care and provision for MND in Northern Ireland, stressing the importance of improving access to clinical trials across the UK.
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About Westminster Hall Debates
Westminster Hall debates are a chance for MPs to raise important issues affecting their constituents and get a response from a government minister. Unlike Prime Minister's Questions, these debates are more in-depth and collaborative. The MP who secured the debate speaks first, other MPs can contribute, and a minister responds with the government's position.