Tourette’s syndrome

Opened the debate

McGinn highlighted that Tourette's syndrome is an inherited neurological condition causing involuntary motor and vocal tics, often accompanied by co-occurring conditions like ADHD and OCD. He cited statistics showing over 300,000 people in the UK are affected, with one school-age child in every hundred having undiagnosed Tourette's. McGinn emphasised that stigma leads to discrimination: 75% of individuals face educational barriers, 71% social difficulties, and 61% transportation issues. He also mentioned a study revealing people with Tourette's are over four times more likely than the general population to take their own lives.

Government Response

It is a pleasure to serve under the chairmanship of Mrs Cummins. I thank Conor McGinn for securing the debate on Tourette's syndrome, highlighting the challenges faced by Emma McNally and her son in accessing care. The minister acknowledges the debilitating nature of Tourette's and the importance of raising awareness through cases like Jay Mangan's children, Rebecca and Jack. Services are primarily commissioned by clinical commissioning groups (CCGs) and multidisciplinary teams provide appropriate support. There are three specialist centres in Sheffield and London for more severe cases. Following a consultant's retirement at Alder Hey Children's Hospital, local CCGs are reviewing options to address the impact on families, including developing a proposal for a tertiary service that will be reviewed later this month. The minister invites Conor McGinn to meet her to discuss the situation further. To support patients, there has been an increase in neurology professionals and clinical psychology training leading to 2,520 additional psychologists by 2025. Funding of £79 million is allocated for expanding child and adolescent mental health services (CAMHS), and an additional £17 million from the Department for Education will improve mental health support in schools. The minister also announced up to £25 million investment to support unpaid carers, acknowledging their significant role and sacrifices. Research into Tourette's continues with studies on deep brain stimulation and digital behavioural interventions. Funding for research varies depending on applications but is welcomed for understanding Tourette's and its underlying conditions. The minister reiterates the importance of supporting families in the north-west and looks forward to discussing further how to secure needed support.