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England Rare Diseases Action Plan 2026

02 March 2026

Proposing MP
Ashley Dalton Lab
West Lancashire
Type
Written Ministerial Statement
Department
Department of Health and Social Care
View on Parliament.uk -->

At a Glance

Issue Summary

The statement discusses the publication of England’s fifth Rare Diseases Action Plan, focusing on the government's commitment to improving the lives of people with rare diseases.

Action Requested

The government has published the action plan on GOV.UK, detailing steps to be taken over the next year to meet the four priorities of the UK Rare Diseases Framework: faster diagnosis, increased awareness, better care coordination, and improved access to specialist care and treatments.

Key Facts

  • The government published England’s fifth Rare Diseases Action Plan on 27th February 2023.
  • The UK Rare Diseases Framework was published in January 2021 following a National Conversation that received nearly 6300 responses.
  • The Framework has four priorities: faster diagnosis, increased awareness, better care coordination, and improved access to specialist care and treatments.
  • The Rare Diseases Action Plan updates on progress made across the NHS, health education, and regulation.
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