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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Announcements

12 May 2022

Proposing MP
Sajid Javid Con
Bromsgrove
Type
Written Ministerial Statement
Department
Department of Health and Social Care
View on Parliament.uk -->

At a Glance

Issue Summary

The statement addresses support for individuals with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) in the UK.

Action Requested

The Government is committing to funding research into ME/CFS, publishing top ten research priorities, and developing a cross-Government delivery plan focusing on improving care and understanding of the condition. A roundtable will be co-chaired with experts including those with lived experience to discuss future steps in research.

Key Facts

  • The James Lind Alliance Priority Setting Partnership published the top ten (plus) research priorities for ME/CFS.
  • Action for ME and people with lived experience contributed to these research priorities.
  • A roundtable will be co-chaired by the Department’s Chief Scientific Adviser, Professor Lucy Chappell, to discuss next steps in ME/CFS research.
  • The National Institute for Health and Care Research (NIHR) will work with the research community to respond to the priority setting partnership's recommendations.
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