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England Rare Diseases Action Plan
28 February 2022
Type
Written Ministerial Statement
Department
Department of Health and Social Care
At a Glance
Issue Summary
The UK government has published the first England Rare Diseases Action Plan on international Rare Disease Day.
Action Requested
The plan aims to improve access to care and treatments for people with rare diseases in England, with a focus on advancing nucleic acid therapies through initiatives like Gene Therapy Innovation Hubs. The progress will be monitored over the coming year, informed by feedback from patients.
Key Facts
- The Action Plan is part of an ongoing commitment to improve lives of those living with rare conditions.
- It follows the UK Rare Diseases Framework published in January 2021.
- Implementation will be phased over five years, focusing initially on actions for the coming year.
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