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Down Syndrome Bill - Sitting 1

26 January 2022

Proposing MP
Julie Elliott Lab
Sunderland Central
Type
Public Bill Committee

At a Glance

Issue Summary

Julie Elliott is discussing amendments to ensure parliamentary scrutiny of guidance on meeting the needs of persons with Down Syndrome. The statement discusses the progress and importance of the Down Syndrome Bill, highlighting its potential impact on families with individuals who have Down syndrome. The statement discusses a Down Syndrome Bill aimed at improving access to appropriate services for individuals with Down syndrome. The statement discusses the Down Syndrome Bill and its significance for individuals with Down syndrome, their families, and caregivers. The statement is about thanking the Chair and various officials for their work on the Down Syndrome Bill.

Action Requested

The amendments aim to require the Secretary of State to lay guidance before Parliament and make consequential changes. The MP thanks colleagues, officials, and public supporters for their work in advancing the Bill.

Key Facts

  • Amendment 1 requires the Secretary of State to lay guidance under clause 1 before Parliament.
  • Amendment 2 is consequential on Amendment 1.
  • Colleagues across parties have reached consensus on the amendments.
  • The Down Syndrome Bill aims to improve recognition and support for individuals with Down syndrome.
  • There are approximately 40,000 people with Down syndrome in the UK.
  • The Bill includes amendments proposed by the right hon. Member for North Somerset which will be landmark developments.
  • Some 47,000 people in the UK have Down syndrome.
  • Clause 1 provides that relevant authorities will be issued with guidance to implement locally.
  • The Government will keep the guidance under regular review and update it periodically.
  • Integrated care boards will have a named lead for overseeing implementation of the guidance.
  • Programs like the work and health programme and intensive personalised employment support programme are available to support people with Down syndrome in securing employment.
  • The Bill aims to improve the lives of people with Down syndrome, their prospects, and their families' lives.
  • It is not a UK-wide Bill but is expected to influence similar legislation in Scotland, Wales, and Northern Ireland.
  • Amendments have transformed the Bill into a landmark piece of legislation addressing complex needs.
  • Dr Liam Fox made a point of order to thank Ms Elliott for chairing the Committee.
  • The Clerks, Hansard officials, departmental officials, Minister, and parliamentary teams were thanked for their work on the Bill.
  • The Down Syndrome Bill has been amended and agreed upon by the Committee.
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