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England Rare Diseases Action Plan 2025
03 March 2025
Type
Written Ministerial Statement
Department
Department of Health and Social Care
At a Glance
Issue Summary
The statement discusses England’s fourth Rare Diseases Action Plan published on international Rare Disease Day.
Action Requested
The government commits to three new actions in the year ahead, focusing on improving care coordination and facilitating access to new therapies for rare diseases. The plan updates progress made since the UK Rare Diseases Framework was published in January 2021 and will be monitored for outcomes during 2025/26.
Key Facts
- England’s fourth Rare Diseases Action Plan was published on international Rare Disease Day.
- The UK Rare Diseases Framework received nearly 6300 responses from the National Conversation on Rare Diseases in January 2021.
- Four priorities of the Framework are helping patients get a final diagnosis faster, increasing awareness among healthcare professionals, better coordination of care, and improving access to specialist treatment.
- The action plan commits to three new actions for the year ahead.
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