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Backbench Business
23 March 2023
Lead MP
Liam Fox
Debate Type
General Debate
Tags
No tags
Other Contributors: 11
At a Glance
Liam Fox raised concerns about backbench business in the House of Commons. A government minister responded. Other MPs also contributed.
How the Debate Unfolded
MPs spoke in turn to share their views and ask questions. Here's what each person said:
Lead Contributor
Opened the debate
Mr. Fox moved the debate, emphasising the importance of the United Kingdom's role in legislating for Down syndrome rights and discussing the recent passage of the Down Syndrome Act 2022. He highlighted issues such as diagnostic overshadowing, professional education, and the need for specific data to monitor the success of the legislation. Mr. Fox also praised Heidi Carter's campaign efforts and stressed the importance of recognising human life regardless of chromosomal differences.
Margaret Ferrier
SNP
Rutherglen and Hamilton West
Ms. Ferrier acknowledged the debate and Act, emphasising that decisions on whether children with Down syndrome attend mainstream or special educational needs schools should be based on individual need rather than diagnosis.
Chris Stephens
Scottish Labour
Glasgow South West
Mr. Stephens noted the importance of addressing diagnostic overshadowing and highlighted its particular significance in healthcare settings, where rights enforcement is crucial for individuals with Down syndrome.
Chris Stephens
SNP
Glasgow Mare Street
Congratulates the right hon. Member for North Somerset on securing this debate and advocating for individuals in the Down syndrome community; shares a constituent's experience of diagnostic overshadowing, where her son Steven was treated inadequately by healthcare providers from 2019 to 2021, resulting in irreversible damage due to chronic pain and bleeding; highlights the importance of including 'Down’s syndrome' in the title of the Scottish Government's learning disability, autism and neurodiversity Bill to ensure that those with Down’s syndrome have access to necessary health checks and support.
Jo Gideon
Lab
Stoke-on-Trent Central
Thanked her right hon. Friend for securing the debate and acknowledged the significant change in attitude towards Down syndrome over the years, citing personal experience of a family member with Down syndrome. Emphasised improvements in life expectancy and living conditions. Highlighted local social groups such as Stoke and Staffordshire Downs Syndrome Social Group and employment programmes like WorkFit which support individuals into work. Raised concerns about barriers to employment and the need for inclusive education policies.
Lee Anderson
Reform
Ashfield
Expressed his support for the debate topic and highlighted a local individual with Down syndrome, Jossie May. Advocated for better access to education and post-education employment opportunities, mentioning Rumbles Cafe as an example of supportive initiatives. Called for more research into health issues affecting people with Down syndrome and improved signposting in maternity care.
Anna Firth
Con
Southend West
The speaker celebrates the achievements of individuals with Down syndrome through projects like the Music Man project, highlighting performances at prestigious venues and recognition from the National Lottery. She mentions concerns about post-19 education options and daycare availability for people with Down syndrome in Southend, suggesting a review of guidance issued by the Government.
Matthew Offord
Con
Hendon
Mr Offord highlighted the importance of hearing less frequent voices, particularly those of individuals with Down syndrome. He praised his hon. Friend Jo Gideon for sharing her personal experiences and paying tribute to parents who care for people with disabilities. He visited Saira Hettiarachchi at the Dillon care home in West Hendon where he met a boy named Michael with Down syndrome who could dance well despite limited verbal communication skills. Mr Offord also mentioned his visit to the Larches community trust in Edgware and discussed popular culture representations such as Liam Barstow (Alex Warner) in 'Coronation Street' and the film 'The Peanut Butter Falcon'. He emphasised that people with Down syndrome have hopes, aspirations, and a range of talents just like anyone else.
Marion Fellows
SNP
West Renfrewshire
Congratulates Dr Fox and acknowledges his knowledge and passion for people with Down’s syndrome, expressing a gentle disagreement regarding the scope of the Act. Emphasises the importance of considering genetic conditions beyond Down’s syndrome due to concerns raised by Genetic Alliance. Acknowledges the Scottish Government's approach in consulting widely and using lived experience when developing legislation. Highlights the commitment of the Scottish Government to incorporate the UN convention on the rights of persons with disabilities into Scots law, advocating for a similar approach at the UK level.
Liz Kendall
Lab
Leicester West
I echo other Members in congratulating the right hon. Member for North Somerset on securing this important debate and supporting people with Down syndrome and their families through his Down Syndrome Act. I believe that what the right hon. Gentleman is trying to do has important implications for wider public sector reform, such as using a specific Act providing for named individuals who are held accountable and for guidance that actually secures change. However, there are other methods of securing changes in public services, like legal rights and direct payments which give people power over their services. I am a long-standing champion of the vision pioneered by Social Care Future, aiming to live in communities where we look out for one another and contribute meaningfully. Despite being in one of the richest countries in the world, it is still far from reality for too many of the 47,000 people living with Down syndrome in the UK.
I highlight the issues of health and social care inequalities faced by individuals with Down syndrome. There are two main areas where we need to focus: regular check-ups for children with Down syndrome and better training for healthcare professionals. I also raise concerns about the lack of support in social care, which is currently facing significant challenges such as closures, unmet needs, and workforce shortages. The Minister should address whether reports of cuts to social care reform funds are true and how they will impact people with Down syndrome.
I further discuss work opportunities for individuals with learning disabilities, noting only 5.5% were employed in 2020 despite a desire among many to work. I mention pioneering work being done at the Leicester Royal Infirmary with Ellesmere College, illustrating how support can lead to real progress.
Maria Caulfield
Con
Scarborough and Whitby
Thanked Dr Fox for securing the debate, praised the National Down Syndrome Policy Group, highlighted young people's contributions and questions from a roundtable meeting at No. 10, and discussed the launch of guidance to support people with Down syndrome across health, social care, education, and housing sectors.
Selaine Saxby
Con
North Devon
Congratulated her constituent Jade Kingdom for being the first person with Down syndrome to complete a sprint triathlon and raising £30,000 for charity.
Government Response
Government Response
Discussed the progress of the Down Syndrome Act, announced plans for guidance on health, social care, education, and housing, highlighted public consultation efforts, emphasised cross-Government approach, and promised to require every integrated care board to have a named lead for Down syndrome.
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Assessment & feedback
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About House of Commons Debates
House of Commons debates take place in the main chamber of the House of Commons. These debates cover a wide range of topics including government policy, legislation, and current affairs. MPs from all parties can participate, question ministers, and hold the government accountable for its decisions.