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Haemochromatosis Screening 2025-06-25

25 June 2025

Lead MP

Torcuil Crichton

Debate Type

Adjournment Debate

Tags

NHSEmploymentClimate
Other Contributors: 5

At a Glance

Torcuil Crichton raised concerns about haemochromatosis screening 2025-06-25 in the House of Commons. A government minister responded. Other MPs also contributed.

How the Debate Unfolded

MPs spoke in turn to share their views and ask questions. Here's what each person said:

Lead Contributor

Opened the debate
I ought to begin with an explanation of what is a very long word. Put simply, haemochromatosis is too much iron in the blood—haemo, blood; chroma, iron; and tosis, too much of it... Untreated haemochromatosis can lead to several common conditions that we might describe as Scottish diseases of ill health: cirrhosis of the liver, heart disease, arthritis and so on. Once spotted, HCT is easily treated by venesection—another long word—which simply means bloodletting. About 450 ml of blood is taken off the patient at each session to chase down the iron levels in the body to normal levels... I have a bit of knowledge of the bloodletting side of the business, because for the past 17 years, I have been attending the Knutsford ward at the Royal London hospital on a regular basis for venesection. I am grateful to the staff there for the incredible treatment they have given me, including consultants such as Richard Marley... A groundbreaking DNA study headed by Professor Jim Flett Wilson of Edinburgh University discovered that the Western Isles are a hotspot for haemochromatosis, this genetic mutation that the body at some stage adopted for survival... The numbers in the Western Isles are sufficiently high to justify population-wide screening. For instance, one in 212 people in the south and east of England carry two copies of the faulty gene, as opposed to one in 62 in the Outer Hebrides... I think that everyone in the Western Isles, or Na h-Eileanan an Iar, should be screened for too much iron in their blood, but I think they should also be offered DNA tests across the board to show what other inherited conditions they might have. Initially at least, the Bill ought not to go to the national health service. The bill for gene testing in the Western Isles should be part of the community payback for the large-scale wind farm developments that are planned for the islands... The Viking genes results are not limited to haemochromatosis; they also showed high levels of hypercholesterolaemia in the Western Isles.

Government Response

NHSEmploymentClimate
Government Response
The Minister acknowledged the debate on World Haemochromatosis Week and thanked the MP for raising awareness. He explained that the UK National Screening Committee assesses evidence for national screening programmes based on internationally recognised criteria, including the condition's impact and treatment options. The committee reviewed genetic haemochromatosis in 2021 but recommended against a national screening programme due to limited evidence of its effectiveness in pre-symptomatic patients. However, new evidence can be submitted annually for review. Genetic testing is available for unexplained iron overload through genomic laboratories and venesection or chelation therapy are treatment options. The Minister commended those who donate blood as an alternative to venesection and thanked everyone involved in supporting the diagnosis and treatment of haemochromatosis.
Assessment & feedback
Summary accuracy

About House of Commons Debates

House of Commons debates take place in the main chamber of the House of Commons. These debates cover a wide range of topics including government policy, legislation, and current affairs. MPs from all parties can participate, question ministers, and hold the government accountable for its decisions.